| Who We Are.. I am a survivor of MDS through a bone marrow transplant in November 2002. My husband Peet and I live in Lake Oswego, Oregon, a smaller city next to larger Portland, Oregon. After my recovery my husband Peet and I felt a great need to help anyone else going through a bone marrow transplant. Our only qualifications were that we had been there. I hope in some way my experiences, the patient, and Peet's as a caregiver, will help you or a loved one push on for the best medical solutions for your situation. I will try to direct you to the web sites that I used to help make my decisions and get the information I needed to feel comfortable that a transplant was what I wanted and needed. Every patient has a different story to tell. We can only tell you ours. Yours might be easier or harder, that I don't know. Some things will be similar: the hope for the perfect CBC and being told we are cured. If my story helps only one MDS or bone marrow transplant patient then I will feel any effort we have made worth it. I hope this site will be of some help to you. Please e-mail us any questions that you might have, regarding being the patient or the caregiver, that you think we might be able to help you with. Best of luck in your decisions Aldeane & Peet Sööt |
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